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The amount of information an individual can read and understand is altered by their emotions as well as where they are in the decision process. Also, information needs change with time and as one moves through the detection, diagnosis, treatment and follow-up process.
The following list includes additional reading materials and web sites that may be helpful to you in your search for more information and understanding about DCIS.
Web sites | Books | Medical Articles and Papers
American Cancer Society (ACS) — A national organization that provides cancer education and information to the public. www.cancer.org
American College of Physicians — Medical information for physicians and other consumers. www.acponline.org
American Society of Clinical Oncology (ASCO) — A professional organization representing physicians who treat people with cancer. Includes practice guidelines, publications, articles and resources. www.asco.org
Cancer Information Service of the National Cancer Institute (CIS) — Information helpline (telephone and Web-based) and publications for health care professionals and the public. www.cancer.gov. English and Spanish. 1-800-4-CANCER or www.cancer.gov/cancerinformation (go to LiveHelp icon for Web-based assistance).
Cancer-Net (CIS) — See Cancer Information Service above. www.nci.nih.gov/cancer_information
Cancer Portfolio — Cancer research projects funded by the National Cancer Institute (NCI) and the United Kingdom National Cancer Research Institute member organizations. Holds 13,000 records. www.cancerportfolio.org
CancerTrials — Information about clinical research studies and basic information about clinical trials. www.cancer.gov/clinicaltrials
Centers for Disease Control and Prevention (CDC) — A federal agency that is responsible for disease prevention and control, environmental health, and health promotion and education activities designed to improve the health of the people of the United States. www.cdc.gov
FDA Cancer Liaison Program — A program of the Federal Drug Administration. Answers questions from patients, their friends and family members and patient advocates about therapies for life-threatening diseases. Includes a Cancer Drug Development Patient Consultant Program that involves patients to participate in the drug regulatory process. www.fda.gov/oashi/cancer/cancer.html
Health Library at Stanford — Consumer health information library to help people make informed decisions about their health and health care. Includes e-books. http://healthlibrary.stanford.edu
International Cancer Research Portfolio (ICRP) — A database of cancer research funded by United Kingdom and U.S. organizations. www.cancerportfolio.org
MEDLINE — Resources compiled by the U.S.
National Library of Medicine (NLM) and published on the Web by Community
of Science. MEDLINE is the world's most comprehensive source of life sciences
and biomedical bibliographic information. It contains nearly 11 million
records from more than 7,300 different publications dating from 1965 to
today. MEDLINE is updated weekly.
http://medline.cos.com
MEDLINEplus — Health Information from the U.S. National Library of Medicine and the National Institutes of Health. Includes prescription and over-the-counter drug information, health issues, and medical encyclopedia. http://medlineplus.gov
Memorial Sloan Kettering Cancer Center (MSKCC) — Treatment, research and education center. Includes information about botanicals and drug interactions. Search: herbs. www.mskcc.org
National Cancer Institute (NCI) — One of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS) and an institute within the National Institutes of Health (NIH). It is the federal government's principal agency for cancer research and training. Also sponsors the Cancer Information Service (CIS). www.cancer.gov
National Center for Complementary and Alternative Medicine (NCCAM) — One of the 27 institutes and centers that make up the National Institutes of Health (NIH). Supports research about complementary and alternative medicine (CAM), training of researchers in CAM, and dissemination of information to the public and professionals regarding which CAM modalities work, which do not and why. Includes treatment and dietary information. www.nccam.nih.gov
National Coalition for Cancer Survivorship (NCCS) — A national survivor-led advocacy organization that provides information and education, and advocates for policy issues that affect survivors' quality of life. www.canceradvocacy.org
National Lymphedema Network (NLN) — Promotes information, referrals, guidance and education about primary and secondary lymphedema to patients, health care professionals, family members and the general public. 1-800-541-3529. www.lymphnet.org
Oncology Nursing Society (ONS) — Information services for oncology nurses, other health care providers, people with cancer and their family and friends. www.ons.org
OncoLink — Provides information about cancer, treatment and research. Sponsored by the Abramson Cancer Center of the University of Pennsylvania. http://oncolink.upenn.edu
PDQ (Physician Data Query) — A National Cancer Institute (NCI) database that contains the latest information about cancer treatment, screening, prevention, genetics, supportive care and clinical trials. www.cancer.gov/cancerinfo/pdq
PubMED — a service of the National Library of Medicine that includes more than 14 million citations for biomedical articles dating back to the 1950s. http://www.cancer.gov/search/pubmed
Up To Date — A web site specifically designed to answer the clinical questions that arise in daily practice and to do so quickly and easily so that it can be used right at the point of care. Physician editors and authors review and update content on a continuous basis and a new, peer-reviewed version is issued every four months. Includes sections for institutions, educators and patients. www.uptodate.com
WebMD — A web site that provides information about diseases, conditions and medications/drugs. www.webmd.com
Web Medicine — Academic, professional and consumer medical resource. www.webmed.com
Y-Me — A national breast cancer organization that provides educational and support programs and materials and a 24-hour bilingual support hotline. English: 1-800-221-2141; Español: 1-800-986-9505. www.y-me.org
After Mastectomy: Healing Physically & Emotionally, by Rosalind Benedet, R.N. (Addicus Books, 2003).
The Alternative Medicine Handbook: The Complete Reference Guide to Alternative and Complementary Therapies, by Barrie R. Cassileth (W.W. Norton, 1998).
Assess Your True Risk of Breast Cancer, by Patricia T. Kelly (Owl Books, 2000).
Breast Cancer: Treatment Guidelines for Patients (booklet). Version IV, National Comprehensive Cancer Network, 2005. 1-888-909-NCCN. www.nccn.org
Choices, by Marion Morra and Eve Potts (Harper Collins Publishing, 2003).
Choices in Healing: Integrating the Best of Conventional and Complementary Approaches to Cancer, by Michael Lerner (MIT Press, 1996).
Dr. Susan Love's Breast Book, by Susan Love and Karen Lindsey (Da Capo Press, 2005).
Ductal Carcinoma In Situ of the Breast, Melvin J.
Silverstein (editor), Abram Recht and Michael D. Lagios (Lippincott, Williams
and Wilkins, 2002).
Handbook for Mortals: Guidance for People Facing Serious Illness,
by Joanne Lynn, and Joan Harrold (Oxford University Press, 2001).
Living Beyond Breast Cancer: A Survivor's Guide for When Treatment Ends and the Rest of Your Life Begins, by Marisa Weiss, M.D., and Ellen Weiss (Three Rivers Press, 1998).
Lymphedema: A Breast Cancer Patient's Guide to Prevention and Healing, by Jeannie Burt et al. (Hunter House, 2005).
Managing the Side Effects of Chemotherapy and Radiation Therapy, 3rd ed., by Marylin Dodd (UCSF Nursing Press, 2001).
Recovering From Breast Surgery: Exercises to Strengthen Your Body and Relieve Pain, by Diana Stumm (Hunter House, 1995).
Sexuality and Fertility After Cancer, by Leslie Schover (John Wiley & Sons, 1997).
Everyone's Guide to Supportive Cancer Care: A Comprehensive Handbook for Patients and Their Families, by Ernest Rosenbaum, M.D. and Isadora Rosenbaum et al. (Andrew McMeels Publishing, 2005).
Understanding Lumpectomy: A Treatment Guide for Breast Cancer, by Rosalind Benedet and Mark C. Rounsaville (Addicus Books, 2003).
What You Need to Know About Breast Cancer. National Cancer Institute, 2005. Free. www.cancer.gov or call 1-800-4-CANCER. NIH Plublication #05-1556
Living with Cancer: A collection of observations and suggestions for families who live with cancer. Northern California Cancer Center, 2007. Free. Call 1-888-315-5988.
For medical articles and abstracts:
MEDLINE — www.ncbi.nlm.nih.gov/entrez/query.fcgi
MEDLINEplus — http://medlineplus.gov
Standards for the Management of Ductal Carcinoma In Situ of the Breast (DCIS), by Morrow M, Strom EA, Bassett LW, et al., CA — A Journal for Clinicians, Vol. 52, No. 5 Sept./Oct. 2002.
Your Pathology Report Determines Treatment. What It Should Contain and How to Read It. Conference paper. Michael Lagios, M.D., 2002.
